
One of my recurrent games of childhood involved figuring out what I would most mind losing. Apparently I had a fixation about health and injury early on. I still do it, as most in the medical world do, seeing a patient suffering. We ask, what would be the worst affliction, knowing we are all in that lottery. My early imagined losses were about going blind or going deaf, and I figured deaf would be a bit more livable - since I would still be able to get around. Never quite figuring on how isolating to not be able to easily communicate with others. I still think I would prefer to keep my sight.
I would have gladly given up my sense of smell, since so many odors nauseated me, but with that would go a large aspect of taste - much of pleasure and appetite. Worst of all would be to lose touch, even in part, for with it goes the ability to move properly, heal, maintain muscle. And it's probably the most common partial loss, because of neuropathies from numerous diseases, strokes, spinal cord injuries, nerve damage or burns. Strange how that never really occurred to me either, then.
Seeing the human body in all it's decrepitude has broadened these considerations. I used to think lung disease would be the worst, but I now figure the brain learns to cope with it, in part. Still awful. I mostly want to take a healthy pancreas to my grave, no diabetes, no autodigestion sort of thing. Bowel disease in general makes every meal fraught. Even dealing with my intermittent chronic pain has it's piquancy, a wearing away of patience and good will. Ultimately I am back to the skin, and any kind of persistent itch, or the poorly understood processes that create it, would drive me mad.
Then I remember the counselor at the Vet Center who talked with me for three straight hours one day after I got back from Gulf War I. Feeling inexplicably distressed at what turned out to be a footnote war, a piece of (dry, gritty, tasteless) cake for me and those I knew well, compared to the nightmare of the Vietnam Era vets. His war. He told me of the worst pain he'd ever had, when shrapnel had ripped apart his leg, the wound that sent him home. But when he got a paper cut, in that moment that's still the worst pain ever. Told me not to compare my pain to other vets, or anyone else, even my own at another time, just deal with what I am faced with, right then, right there.
I know this is my life, now. Accepting that my back will always hurt, sometimes more, sometimes less, but always there, may help me cope better. Because I will always have to do my exercises, take anti-inflammatories on occasion, massage sore spots, move with intent, sit with care, and be prepared to start at the beginning over and over, without ignoring the damage and thereby causing more damage.
It's ok, really. A good trade, nor would I choose differently. I would not exchange a moment of my well-earned pain for anything as transient or false as say, youth or prettiness. But then I would not swap my worst times with D for any moment without him. I'll take what I have, and pay the cost again if need be. Evading it would cheapen the gift of such knowledge, as would simply succumbing.
Off to get some ice, now.